On our floor, the kids are split by diagnosis. So one CCLS gets the kids with blood disorders (like Sickle Cell) and ALL (the kinder, gentler leukemia). The other (my mentor) gets solid tumor (like brain and bone tumors), AML (the rougher, tougher leukemia), and all the kids getting bone marrow transplants.
Day one on the floor was an eye opener. We started with morning report at 8:30 am, in which we met with the charge nurse to get a quick run down on each child. This was my opportunity to learn how very much I need to learn about the medical side of treating cancer, blood and bone marrow disorders. I think I understood about 10% of what the nurse said!
At 10:30 am we had a Code Blue. My mentor later told me this was the second one she'd ever seen in all her years in hem/onc! For those who don't know, a Code Blue is true medical emergency. I means that someone is not breathing/heart not beating. The situation ended happily, the child was fine. But for about 5 minutes it was pretty scary. About 6,742 people came running as the alarm went off. Doctors, nurses, NP, respiration therapist, social work, chaplaincy, child life, security, etc. It was reassuring to see so many people responding so quickly, calmly, and competently! I performed my role perfectly, and with out prompting -- I stuck my back up against a wall, and stayed the heck out of the way! Once the first wave of responders went running by, my mentor and I checked the hallways and surrounding area for any kids/families that might be witnessing the Code and feeling confused or scared. We didn't find any, but if we did, it would have been our job to help them understand what was happening, and soothing their fears, and helping them to cope and process this frightening event. The child that coded was assigned to the other CCLS on the team, so she went to the child's room to provide support for siblings and family present in the room. A few minutes later it was all over, child safe . . . happy ending.
The rest of the week was much quieter by comparison. My mentor walked me thru the basics of the medical stuff, so by Tuesday morning's report, I was able to understand about 90% of what the nurse said! Yay! (Learning that fast was a huge boost to my confidence!)
I had to opportunity to observe two different Diagnosis Teachings. One of the jobs of the CCLS is to educate patients, in an age appropriate manner, about their diagnosis. As you can imagine, explaining leukemia to a 4 year old is very different then explaining it to a 16 year old! The first teaching I observed was for the siblings of a newly diagnosed leukemia patient, helping them to understand their sister's disease, as well as helping them to understand why she's in the hospital, and Mommy is away from home so much to help her. The second teaching was for also for a sibling, who would be a bone marrow donor for his brother. My mentor used a giant toy bone, which unzipped, and pulled out felt pieces representing each type of blood cells. "The red blood cells' job is to bring energy to all the parts of your body. The white cells are your solider cells, they fight off infections! These are called platelets, and they are like band-aids. And these cells are cancer cells. They don't have a job. They make your blood sick."
This week, I also learned a lot about working on a healthcare team, and about the roles of the different people on the team. I especially enjoyed a talk from one of the Chaplains about the spiritual teachings on death and dying offered by many of the different religions from around the world. From intake meetings, to care conferences, I got to see it all! And everyone was so welcoming and made me feel right at home.
One of my most rewarding moments this week was with a sweet little boy who came in to the hospital on a return visit. (Our kids in hem/onc are in and out several times for multiple courses of chemo.) When he came in he was in a great deal of pain. That combined with his anxiety and shyness made it very hard to connect with him. We kept checking back with him throughout the week. Yesterday when we brought bubbles, he actually smiled and made eye contact. It was pretty exciting to see that rapport beginning to build.
Check back next week to hear more. I'll try and post reflections each Friday. Meanwhile, I hope to get some Malcolm pictures up later this weekend.







